27/03/2020
Marie Skłodowska-Curie Actions

Postdoc candidate for a MSCA IF in ELSI, genetic risk, family communication, digital solution

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  • OFFER DEADLINE
    15/05/2020 23:30 - Europe/Brussels
  • EU RESEARCH FRAMEWORK PROGRAMME
    H2020 / Marie Skłodowska-Curie Actions
  • LOCATION
    Luxembourg, Esch-sur-Alzette
  • ORGANISATION/COMPANY
    Megeno (application management through Luxinnovation)

Megeno is interested in hosting a postdoctoral fellow within the Marie Skłodowska-Curie Individual Fellowship programme. 

 

         Please note that this opportunity is not a funded positions (yet); it depend on

         1. The organization selecting you for continuing the process and

         2. A successful proposal written mostly by you (with some input from your host organization           in Luxembourg) and submitted before September 9th 2020.

 

 

Project idea: 

Although the potential of genetic information to improve medical care for families has long been recognized, adding the familial dimension to medical genetics has important ethical, legal, and social implications (ELSI). These ELSI considerations include the following:

  • Possible conflict between different family members’ rights. For example, an individual’s right to be informed about their genetic risk predisposition may directly or indirectly violate their family member’s right not to know
  • Psychosocial barriers to the communication of actionable genetic risk information with family members, such as complex family dynamics or estrangement
  • The impact of genetic risk information on the emotional well-being of family members and the quality of their relationships To date, research into ELSI topics around family communication of genetic risk information hason the “traditional” paradigm, which emphasizes interpersonal interactions among family members. However, the emergence of new digital solutions, such as the platform developed by Megeno, means that the way in which genetic risk information is communicated and discussed among family members is changing. In addition, the increasing number of individuals subjected to whole genome sequencing calls for scalable processes that provide audit trails and facilitate quality control. It is therefore warranted to revisit ELSI issues around familial genetic risk communication specifically in the context of the emerging hnologicallymediated solutions.

The aim of the present post-doctoral research project is to identify effective strategies for using digital health solutions to address key ELSI issues around family communication of genetic risk information. More specifically, the project will have the following objectives (to be completed in the order listed):

  1. Comprehensively mapping out ELSI topics pertinent to the communication of genetic information among family members
  2. Providing concrete recommendations for integrating or modifying specific features into Megeno’s digital platform to address these ELSI issues
  3. Evaluating the effectiveness of the proposed features in a small-scale pilot project with users and their family members

Offer Requirements

  • Experience with ELSI-related research
  • Completion of doctoral work (e.g., PhD or equivalent) by fellowship start date
  • Background in law, social sciences, or health sciences
  • Creativity and enthusiasm towards bio-ethics and law
  • Communication skills as well as fluency in oral and written English

Institute description: 

Megeno S.A. (formerly Megeno S.à r.l.) was formed by a group of accomplished Luxembourgbased scientists and experienced entrepreneurs from the Munich bio-health sector. Its founders, directors, and CEO have extensive experience in successful start-ups and growth of new ventures. Megeno is located in the heart of Belval, as one of the first start-ups in the recently-formed Incubator of the University of Luxembourg.

Our interdisciplinary team of 16 people encompasses experts from systems biomedicine, bioinformatics, data science, business development and corporate development, of which eight are MD or PhD holders. Megeno is looking to further expand its multidisciplinary research team and expertise to better serve and broaden its target market. To do so, the total number of research scientists is expected to grow to between 20 and 30 by the end of 2021.

Megeno is building a Luxembourg-based research centre implementing novel and secure technology and methodologies for using whole genome sequencing data in the early diagnosis and prevention of diseases. In addition to its partnerships with healthcare institutions throughout Europe, the company is working with international leaders in bioinformatics, clinical genomics, data science and in the assessment of ethical, legal and social implications of genome sequencing.

Ultimately, Megeno strives to establish Luxembourg as a safe haven for genomic data and to become a leading provider of genomeinformed disease prevention services to individuals, healthcare providers and public health agents.

 

About Marie Skłodowska-Curie Actions Individual Fellowship:

The MSCA IF are postdoctoral fellowships, financed through the European Commission for 2 year positions, covering salary and research costs of the researchers, who can come from anywhere in the world. The evaluation process of these programmes is more about the project and the career development of the candidate, than his/her publication record. The organizations in Luxembourg that want to host such talented researchers include large public research organizations as well as private companies that offer interesting job perspectives after completion of the fellowship.

Minimal eligibility criteria

  • Individual: applicant applies together with host institute
  • PhD at the deadline or Masters plus 4 years of full time equivalent research experience
  • Not working or living in Luxembourg for longer than 12 months before the call deadline
  • For rules see here or contact your NCP

 

How to apply

Please submit your CV to Charles Betz, Advisor - European R&D and Innovation Support at Luxinnovation, until May 15th 2020 and refer to which position(s) you are applying for; you can also send several finetuned CVs if you are interested in multiple positions. Make sure you address the text and requirements mentioned by the respective hosts. 

Please note that applications are made through Luxinnovation, your contact point for Horizon 2020 in Luxembourg, before being handed over to the host company.

 

Luxinnovation, the Luxembourgish Innovation agency and National Contact Point for MSCA, will support both you and your future host institute during your application phase. For all applicants coming to Luxembourg we offer guidance documents, webinars, training in proposal writing and we will review your proposals if you wish so (depending on our availability). In 2019, MSCA IF proposals from Luxembourg had an average success rate of 28.5%, and proposals reviewed by our service 42%.

More information can be found on our website.

 

  • ELSI
  • genetic risk
  • family communication
  • digital solution
 

 

Disclaimer:

The responsibility for the hosting offers published on this website, including the hosting description, lies entirely with the publishing institutions. The application is handled uniquely by the employer, who is also fully responsible for the recruitment and selection processes.